The Petitions Committee has scheduled the following debate on to access to Orkambi and other drugs for people with cystic fibrosis.
Petitions Committee debates take place in Westminster Hall on Mondays from 4.30pm, for up to three hours. Members who would like to speak in these debates are encouraged to put down their name to speak in the usual way with the Speaker’s Office.
Monday 10 June
“That this House has considered e-petition 231602 relating to access to Orkambi and other drugs for people with cystic fibrosis”
The motion will be moved by Paul Scully MP, a member of the Petitions Committee.
466 people in Aberconwy have signed this petition. I have been visited and have met a number of the parents who feel so strongly about this matter. I have been deeply moved by their commitment. You can read more here about Aberconwy families affected.